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There are over 1.5 million people in the United States with a diagnosis of Parkinson’s, and many more who have not yet been diagnosed. The young population is an expanding population. Although the average age of diagnosis is approximately 60 years of age, 10-20% of people with PD develop it before the age of 50. About half of those are diagnosed before the age of 40. The mission of the American Parkinson Disease Association is to “ease the burden and find the cure” by providing patient education and support services, raising awareness and raising funds for promising research.
The American Parkinson Disease Association has two Parkinson’s Information & Referral Centers located at Glenbrook Hospital in Glenview, IL.
Midwest Information & Referral Center
The Midwest Parkinson’s Information and Referral Center services the Parkinson’s community of Illinois and Northwest Indiana. In conjunction with the American Parkinson Disease Association (APDA) Midwest Chapter, the Information & Referral Center offers services and support to patients, families, health care professionals and anyone who has an interest in learning more about Parkinson’s disease.
How We Can Help
In addition to educational material, information about the following services can be obtained by calling the Information & Referral Center at 847.657.5787 or toll-free at 1.800.223.9776:
Receive a free copy of the Parkinson's Disease Handbook: a Guide for Patients and Families and other educational materials
Susan Reese, MA, RN, LCSW, coordinator of the Information and Referral Centers at Glenbrook Hospital at the "Art" of Living with PD art exhibition.
- Subscribe to Midwest Parkinson’s Newsletter
- Find the location of a support group near you
- Ask for assistance in starting a support group in your area
- Receive referrals to movement disorders specialists or other health or social service resources
- Learn about and register for educational conferences, symposia and other Parkinson's Disease programs and activities
- Receive information about respite services available to caregivers
- Participate in activities and events to raise awareness and funds for PD
- Become a board member of the Midwest Chapter of the American Parkinson Disease Association or volunteer to assist with the programs of the Chapter or the Information & Referral Center.
- Reserve a PD speaker for in-service education programs for organizations and institutions
- Make a donation in honor or memory of someone to help support Parkinson’s services and research
Contact Us
American Parkinson Disease Association
Information & Referral Centers
Glenbrook Hospital
2100 Pfingsten Road
Glenview, IL 60026
1.800.223.9776
1.847.657.5787
National Young-Onset Center
If you are young and have Parkinson's disease, you are not alone. There are thousands of young adults in the United States and thousands more throughout the world who are living with Parkinson's disease and tackling the challenges of career, parenting and pursuing goals for their future. The National Young-Onset Center was established to provide educational and supportive resources directed toward your special needs and concerns. Services are provided throughout the United States to young people affected by Parkinson’s disease and their families. The Young-Onset Center is the only center of its kind in the United States that focuses its services entirely on the younger population.
How We Can Help
The American Parkinson Disease Association offers a variety of free services and information for young onset Parkinson's disease including:
- The Young Parkinson's Handbook: A Guide for Patients and Families; as well as booklets on exercise, nutrition and a variety of other topics and issues relevant to the younger patient
- Young Parkinson's Newsletter published three times a year
- Referrals to physicians and services throughout the U.S. Resources include financial consulting, social work, medical research trials and more
- Nationwide support group referrals
- Assistance in establishing a young-onset Parkinson's support group
- Person to Person Program providing one-to-one contact with other young adults with PD
- Library of books/videotapes for loan
- Information Line with helpful staff to answer your questions
- Young Parkinson's website with links to other PD resources
- Network of APDA Information & Referral Centers across the U.S.
Special Concerns
We understand that you may have special concerns, including:
- personal relationships - family, friends
- physical concerns
- psychological/emotional issues
- career issues & financial planning
- sexuality concerns
- medical research
We are committed to educating and encouraging the individual and his/her family and friends.